THE LONG AND ROCKY ROAD

Oh gosh, its been so long since I wrote anything, so long since I felt like writing anything.  So much has happened in my life, I'm almost lost for words and where to begin.   I guess things changed in me when I took on two very nice Indian boarders in my house.

Their names David and Vinney.  I learnt so much from them,they helped me become what I call Free. With warm encouragement, support and with complete non-judgemental hearts they empowered me to take off my wigs and hats (except I need a hat when its cold lol), to be brave and go out in public with my bald head. They promised we would all walk down the street together, they would walk with me!  Anyways, it turned out, then I got sick in January this year and had emergency appendix surgery on my birthday..eeek.  David and Vinney came to visit me in hospital and we walked the hospital corridor together (instead of the main street) me with my bald head, and oh yes I have tattoos on my head...I decided, and its a typical Gaelene thing, that if people were going to stare at me I would give them something worthwhile to stare at lol.  As you can see, I have been brave enough to upload some photos for you all to see the new me.  Of course I still wear my wigs to work and it still feels good to dress up nicely and put some hair on, but I have the freedom of choice now, that's huge!
I just know that the right people come into our lives at the right times, I can never thank David and Vinney enough, thank you for walking with me.  I love them to pieces and now call them my sons, they are a part of my life forever.

Well, get ready for the Boom!  I feel like I only just got "Free" and Boom, the next challenge begins, and its a biggie!  I have now been diagnosed with a Corneal Disease in my eyes called Pellucid Marginal Degeneration.  It is rare (wow I don't do things in halves right?).  I have practically lost the sight in my right eye, I only see distortion.  My glasses aren't working for me anymore, they cant be strengthened anymore and to be honest I am fed up with the public health system and the waiting waiting waiting.  While I wait the disease progresses.  Deep down inside I fear going Blind, yep there you are I said it, I fear going blind.  Oh gosh, it is daunting to know that the life long suffering of Chronic Eczema is the precursor to my eye disease. Did you know that as your skin is so are the corneas of your eyes ?   It's a long and rocky road for my eyesight now, but I know I don't walk it alone, and I'm so full of love and gratefulness for my loved ones, the family and friends I have that walk, have walked and continue to walk this rocky road with me.  Big hugs everyone, I will keep you updated on the progress on eye treatments and surgerys etc I require when I know more. 
I sure can say that it makes hair feel so less important ! 
Big hugs everyone,   Gaelene xx